Caregivers Need Financial Help

 

Many caregivers for Alzheimer’s patients need financial help.

 

While taking care of Shelley, our daughter, I met two wonderful ladies who are now my friends.

These two women have suffered with financial stress. What happens when one makes too much money to qualify for government aid?

A wife or husband can spend all available resources in care provisions, and after assets are gone, they might qualify for government assistance.  But in those cases, nothing is left for the caregiver’s present or future living conditions.

One of my friends called her daughter each month and asked, “What can we sell this month?”  Before her hubby passed, she sold all assets as she paid for his care. She now lives frugally on Social Security.

This happens repeatedly to families.

I’ve heard people say, “Take care of them at home and save money.” This is physically impossible for most wives. Women don’t have the strength to do this.

So, why can’t a portion of donations go to people who make monthly payments to facilities?

In 2023, the Alzheimer’s Association, founded in 1980, received over $432 million. A large portion of those monies came from donors. $100 million dollars went into research.

The Alzheimer’s Association has monies earmarked for educational scholarships for teens who suffer from a loved one with Alzheimer’s. Why can't families apply for financial aid from the organization? Perhaps the government forbids organizations to give to individuals. Although, Tunnel to Towers gives to individuals, so I assume others can also.

Here's another idea.

I’m calling for a financial blessing to families who are running out of funds. Please write to the Alzheimer’s Association and request this.  It will take a large number of requests to make an impact.

If you know someone who struggles monthly as they pay a facility for care, send them a monetary blessing now and then. Instead of contributing to the Association, give a contribution directly to a person. A caregiver appreciates the amount...no matter how small or large the gift is, and it will go up-front to a family with this terrible disease.

1. Give as you can to help an individual.

2. Contribute to research.

 

Alzheimer's Info

Alzheimer's Funding

Terminal Lucidity

 

Terminal Lucidity

Ever heard of this event? An incident where a perishing loved one becomes normal again? They look joyful, happy, sparkle, and make sense?

I’ve seen it happen once. A friend of mine lay dying of cancer. My hubby was her pastor, and we visited her in the hospital late one evening. This dear lady had been comatose for several days, and here she was, cognitive and talking up a storm. We spoke about her life and old times. After prayer, we left, but I hated to leave her alone. I wished her husband were present. He would have loved to see her as she had always been. We just happened to be there at the right time and place. She returned to a coma and died two days later.

People sometimes undergo this phenomenon before death. However, most of  those who encounter it have extreme brain disorders.

I read the following in a Wikipedia article. This article would be a good one to peruse.

“According to historical reviews headed by the biologist Michael Nahm, the phenomena have been noted in individuals with diseases which cause progressive cognitive impairment, such as Alzheimer's disease, but also schizophrenia, tumors, strokes, meningitis, and Parkinson's disease.^[8][9][10] “

Wikipedia

Scientists have documented cases where this strange, but time-limited miracle has occurred. Dementia sufferers suddenly regained lost mental abilities. Individuals who once were unable to communicate for long periods of time abruptly recognize a loved one. Records reveal dementia patients “wake up” and request their favorite foods.  Others have been known to predict their death and say their goodbyes. This sudden lucidity can last for hours or days.

Terminal Lucidity is a consequence unknown to many caregivers.  A few providers feel traumatized when, without warning, their loved one speaks lucid sentences. A number believe a miracle has occurred and start talking about making changes in the care. Hopefully, someone is around to explain the rare situation.

Knowledge helps everyone involved to understand.  Expecting such an occurrence can lessen stress and trauma.

If our daughter experiences this terminal lucidity, I hope we are around to see it like we were with our dying cancer friend. I believe Shelley would thank us for the care we have given her, and then she would tell us she is ready for heaven. She might even quote her favorite Scripture.  We quote it to her all the time.

“Don't worry about anything; instead, pray about everything; tell God your needs, and don't forget to thank him for his answers.” Philippians 4:6-7

One final connection would be a surprise, but it would also be a blessing to us.

Helps for Caregiver

1. Read articles on Terminal Lucidity. 

2. Realize it might not happen, but it could.

3. If sudden mental clarity happens to your loved one, consider it a gift.